EULAR PARE
The EULAR PARE Podcast discusses topics relevant to the PARE community and individuals living with rheumatic and musculoskeletal diseases. It features conversations with experts, patient advocates, and researchers. The podcast aims to inform and empower patients and their families. Episodes cover disease management, treatment advances, and advocacy efforts. It is produced by EULAR, the European Alliance of Associations for Rheumatology.
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Socio-Economic Challenges of Living with RMDs
Living with an RMD can impact not only your health, but also your career, finances, and future opportunities.💚 In this episode, we explore the real-life challenges of navigating work while living with an RMD. From workplace accommodations and employment rights to the broader socio-economic impact of chronic disease, our guests share their insights and experiences.Hosted by Tanita-Christina Wilhelm
News from Africa
Join us on the EULAR PARE Podcast as host Jeanette Andersen speaks with Franklin Hiagbe, a patient advocate working to improve autoimmune disease care across Ghana and Africa, and Maranda van Dam, Founder of ASASA and a leader in patient-led advocacy in South Africa. In this episode, they share clear and inspiring insights on patient advocacy, innovation, and inclusion across the African rheumatol
World Arthritis Day 2025 - Achieve your Dreams
In this special EULAR Young PARE & EMEUNET Joint Podcast episode for World Arthritis Day 2025, themed “Achieve Your Dreams!”, we explore the hopes and aspirations of people living with rheumatic and musculoskeletal diseases (RMDs) and the young rheumatologists who support them. Hosted by Tanita-Christina Wilhelmer, featuring Marko Mladenovic and Marcos Séneca García Rodríguez from Young PARE a
Working with an RMD: Real Stories, Real Strategies.
Join our host, Tanita-Christina Wilhelmer, as she speaks with Sarah Copsey, Sarah Bennett, Sina Budeja and Giovanni Mascarino. Four inspiring guests who open up about their personal journeys, share practical tips, and offer powerful advice for navigating work life while living with a rheumatic and musculoskeletal disease (RMD).
Young PARE Podcast - Studying with an RMD: Real Stories, Real Strategies
Join us on the Young PARE Podcast as our host, Tanita-Christina Wilhelmer, delves into a captivating discussion with guest Sophia Marantidou. In this inspiring episode of the Young PARE podcast, we dive into the realities of managing a career while living with a rheumatic and musculoskeletal disease (RMD). Our guests shares her personal stories, practical tips, and powerful advice for anyone navig
Living with an RMD in South America - insights and challenges
Join us on the EULAR PARE Podcast as our host, Jeanette Andersen, speaks with Gonzalo Tobar from Chile, a representative of ASOPAN and Lupus Chile. In this episode, Gonzalo sheds light on the challenges faced by people living with RMDs and patient organisations in South America to the EULAR PARE audience. There is much in common and plenty to learn from one another!
Knowledge Transfer Programme
Join us on the EULAR PARE Podcast, where we facilitate the exchange of insights and expertise among the PARE Community. In this episode, we discuss the Knowledge Transfer Programme (KTP). Our host, Nadia Malliou, sits down with Ingrid Põldemaa from Estonia to explore the impactful projects her organisation has successfully implemented with KTP support. Discover how your organisation can benefit f
Young PARE Podcast - Travelling and living abroad with RMDs
Join us on the Young PARE Podcast as our host, Tanita-Christina Wilhelmer, delves into a captivating discussion with guest Caroline Kirsten. Together, they explore the distinctive challenges encountered by those living with Rheumatic and Musculoskeletal diseases (RMDs) when travelling and living abroad. Tune in for invaluable insights and expert tips on navigating journeys abroad while living with
Young PARE Podcast - World Arthritis Day 2023: 'Living with an RMD at all stages of life'
In celebration of World Arthritis Day 2023, Young PARE is hosting a podcast on the topic "Living with an RMD at all stages of life". Our host, Tanita-Christina Wilhelmer, asks participants about their personal experiences living with an RMD and how their diagnosis has affected their lives. Listen to their inspirational stories and helpful tips on coping with a new diagnosis.
Young PARE Podcast - Building a professional career while having an RMD
In the third Young PARE podcast episode, Tanita-Christina Wilhelmer discusses with Sladjana Rumpl Tunjic different paths to fulfilling professional careers. How do you manage your RMD when working full-time? Why is it sometimes not possible to work 100%? How can you find a work-life balance? And why is it important to ask for help?
Young PARE Podcast - Body image and RMDs
In the second Young PARE podcast, Caroline Kirsten and Ilaria Bini discuss with host Tanita-Christina Wilhelmer the body image while coping with RMDs, and how it influences various relationships, friendships and intimacy. How are tattoos connected with RMDs? Find out in this episode!
Meet the EULAR PARE Outstanding Award Winner 2023 Dieter Wiek from Germany
This episode features the EULAR PARE Outstanding Achievement Award winner 2023. EULAR PARE meets with Dieter Wiek from Germany, who is the first person to be awarded with this important recognition for his outstanding work for EULAR and commitment as a volunteer for more than a decade. An inspiration to all volunteers.
Young PARE Podcast - Growing up with an RMD
This episode features a brand new Young PARE Podcast series focusing on young people living with RMDs. Sophia Marantidou from Greece and Giovanni Mascarino from Italy, who both received the RMD diagnosis in their childhood, discuss with our host Tanita-Christina Wilhelmer growing up with an RMD.
Meet a PARE Best Practice winner - Axial Spondyloarthritis Association of South Africa
This episode features a new series within the EULAR PARE Podcast where EULAR PARE meets with representatives of RMD patient organisations outside of Europe. We start with South Africa and the African continent in general, where we will hear from Maranda van Dam, Chairperson of the Axial Spondyloarthritis Association of South Africa, what challenges people with RMDs are facing and what patient orga
How to create a programme for patient education after diagnosis
Lene Mandrup Thomsen (Danish Rheumatism Association) and Jeanette Andersen (Lupus Denmark) discuss how their organisations have created a programme for patient education after diagnosis called “Know Your Lupus” and how this has helped patients manage their disease.
Celebrating EULAR's 75th Anniversary!
EULAR Past-President, Iain McInnes, and EULAR PARE Vice President, Elsa Mateus, discuss EULAR's biggest achievements over the years, and what we can expect for the future of rheumatology and the organisation, in this very special episode celebrating a momentous occasion - EULAR's 75th Anniversary!
Patient representatives at the EULAR Congress: experiences and expectations
Simon Stones (patient advocate from the UK) and Alice Grosjean (Swiss League Against Rheumatism) discuss the meaning and importance of the EULAR Congress to the PARE member organisations but also to the patient representatives themselves.
Why and how to implement peer-mentoring programmes
Nele Caeyers and Diederik De Cock from Belgium's patient organisation ReumaNet talk about peer mentoring: what is it, how ReumaNet has implemented peer mentoring programmes in their country, as well as some lessons learned from this experience.
Meet our collaborators - EURORDIS
This episode initiates a new series within the EULAR PARE Podcast where we aim to get to know the European organisations that collaborate with EULAR PARE a little better. Simona Bellagambi and Ilaria Galetti from EURORDIS share its history, connection to EULAR PARE and the excellent work that they do for people with rare diseases in Europe, including people with RMDs.
Meet a PARE Best Practice Fair winner - NRAS
Ailsa Bosworth from the UK’s National Rheumatoid Arthritis Society talks about SMILE-RA, a project on self-management e-learning for people with RA, which was also one of the winners of the Best Practice Fair at the EULAR PARE Conference.
Meet a PARE Best Practice Fair winner - ASIF
Jo Lowe and Jo Davies from the Axial Spondyloarthritis International Federation (ASIF) talk about their project on the delay to diagnosis that people with axial spondyloarthritis often face, which was also one of the winners of the Best Practice Fair at the EULAR PARE Conference.
Meet our members - Arthritis Ireland
This episode initiates a new series within the EULAR PARE Podcast where we aim to get to know the EULAR PARE member organisations a little better. Brian Lynch and Peter Boyd from Arthritis Ireland share its history, connection to EULAR PARE and the excellent work that they do at a national level for people with RMDs.
People with RMDs in the workplace: challenges and recommendations
Loreto Carmona, Chair of the EULAR Advocacy Committee, and Suzanne Verstappen, Convenor of the EULAR Task Force on work, talk about the challenges for people with RMDs in the workplace and the EULAR Points to Consider to support people with RMDs to participate in healthy and sustainable work.
Get to know EU-OSHA's Lighten the Load campaign!
Sarah Copsey from the European Agency for Safety and Health at Work (EU-OSHA) shares information about the work of this organisation as well as its Lighten the Load campaign.
EULAR Campaign: How Did It All Start?
Former EULAR President Johannes Bijlsma discusses the history and evolution of one of EULAR’s most important activities in the area of advocacy - the EULAR Campaign.
EULAR Campaign: experiences from the PARE members
Marios Kouloumas from the Cyprus League Against Rheumatism and Clare Jacklin from the UK’s National Rheumatoid Arthritis Society discuss the PARE member organisations’ experiences and opportunities in engaging with the EULAR Campaign.
Why do we celebrate World Arthritis Day?
Representatives from PARE members - Boryana Boteva from the Bulgarian Organisation for Patients with Rheumatic Diseases and Ana Vieira from the Portuguese League Against Rheumatism - talk about the meaning and importance of World Arthritis Day, and why it's important to make noise around RMDs.
Why and how to set up a national Patient Research Partner network
Patricia Pennings and Petra Borsje from Reumazorg Nederland, the PARE member organisation from the Netherlands, talk about their work, establishing and coordinating a national Patient Research Partners network.
Volunteering with EULAR PARE
Jeanette Andersen, leader of the PARE Editorial Board and Elsa Mateus, EULAR Vice President representing PARE, share their experiences as well as the opportunities and new developments in volunteering for EULAR PARE.
Meet the new EULAR President!
Annamaria Iagnocco shares her vision and plans for EULAR as the new EULAR President, focusing especially on topics related to PARE and the patient community.
Meet the 2020 Stene Prize winner!
Hristina Bankova from Bulgaria shares her experience of participating in and winning the Stene Prize competition, also focusing on the overall essay topic of volunteering.
What does the EULAR Congress mean to the PARE members?
Representatives from PARE members - Petra Balazova from the Slovak League Against Rheumatism and Connie Ziegler from the Danish Rheumatism Association - share information about their organisations' participation at the EULAR Congress as well as what is the importance and meaning of the Congress to them.
Visions for the future of PARE
Souzi Makri shares her vision and key projects for the future of PARE as the next Chair of the EULAR PARE Committee.
PARE at the EULAR 2021
Dieter Wiek, EULAR VP representing PARE, and Elsa Mateus, Chair of the EULAR PARE Committee, present the PARE programme at the EULAR 2021 Congress and invite the PARE community to join in, while also discussing insights about the evolution of the PARE presence at EULAR Congresses over time.
